Patients and caregivers survey on COPD
January 30, 2025
The Archipel COPD Working Group is launching a survey for individuals affected by chronic obstructive pulmonary disease (COPD), either as a patient or a caregiver.
The survey is titled Enhancing Access to Existing COPD Education and Self-Management Resources.
Through their lived experiences, patients and caregivers struggling with respiratory problems can identify barriers and opportunities to improve the dissemination and use of existing educational materials and self-management tools and resources. The ultimate goal of the survey is better outcomes and quality of life for people living with the disease.
Who can complete the survey?
- Individuals living with signs, symptoms or diagnosis of COPD, as well as caregivers.
- Signs or symptoms of COPD may include chronic cough, shortness of breath, wheezing, frequent respiratory infections, fatigue, chest tightness, swelling in the ankles or feet, unexplained weight loss, bluish tint to lips or fingertips, and increased mucus production.
- People who have accessed COPD-related resources or prevention services such as smoking cessation programs, breathing exercises, flu and pneumonia vaccinations, pulmonary rehabilitation, oxygen therapy, spirometry testing, support groups, palliative symptom control, hospice care, etc.
Deadline to complete the survey
- The survey starts on February 3rd, and the deadline to answer is February 28, 2025.
How to complete the survey?
- The anonymous survey can be answered in English or French through an online form.
About Archipel's COPD Working Group
For more information on our priority projects and activities, check out Chronic Obstructive Pulmonary Disease (COPD) Working Group.
In February, Canada celebrates Black History Month. And in early March, Black Mental Health Week is celebrated in Ottawa. Both events are opportunities to celebrate the achievements and contributions of Black communities in Canada. They are also opportunities to raise awareness and equip healthcare personnel to better understand and respond to the needs of people from Black communities. In Canada and in Eastern Ontario, it is impossible to talk about mental health without addressing the systemic barriers that Black communities still face. The need for mental health services has exploded in recent years, and organizations need to offer culturally appropriate and anti-racist care and services. That’s why the Archipel Ontario Health Team (OHT) and its partners are taking steps to dismantle the foundations of systemic racism through an anti-racism training project offered in collaboration with the Research Laboratory V-TRaC.
En février, le Canada célèbre le Mois de l’histoire des Noirs. De plus, au début mars, la Semaine de la santé mentale des Noirs est soulignée à Ottawa. Ces deux événements sont des occasions de célébrer les réalisations et l’apport des communautés noires au Canada. Ce sont également des occasions de sensibiliser et d’outiller le personnel de la santé afin de mieux comprendre et de répondre aux besoins des personnes issues des communautés noires. Au Canada et dans la région de l’est de l’Ontario, on ne peut parler de santé mentale sans aborder les obstacles systémiques auxquels les communautés noires sont encore confrontées. Les besoins de services en santé mentale ont explosé au cours des dernières années et les organisations doivent offrir des soins et des services culturellement appropriés et antiracistes. C’est pourquoi l’Équipe Santé Ontario (ÉSO) Archipel et ses partenaires prennent des mesures pour démanteler les assises du racisme systémique par le biais d’un projet de formation antiraciste offert en collaboration avec le Laboratoire V-TRaC.
L'Équipe Santé Ontario Archipel est financée par Santé Ontario.
Nous reconnaissons respectueusement que le territoire sur lequel nous opérons est le territoire traditionnel non cédé des Algonquins.
